The Cohort Studies

The Cohort Studies are an integral part of Centre activities designed to monitor population level trends by community, Queensland hospital and health service districts and at regional level.  

The first is to establish enrolled patient cohorts (with informed consent) with prospective and retrospective unit record linkage to service data (Primary Health Care services, relevant laboratory results, prescribed medicines, hospitalization – especially avoidable hospitalization and deaths). The second approach will be to work with the hospital and health services to produce area-level reports looking at trends in relevant outcomes.

Health record linkage and other clinical level data will be used to monitor trends over time in clinical indicators and health service utilization and can be aggregated to inform aspects of primary health care quality improvement, including hospitalisations and disease progression.

Queensland Communities where Cohort Recruitment is taking place:

Getting Better at Chronic Care

In total 213 participants of the 327 community residents identified by the services as eligible for recruitment to the project consented to join the project. 

Participants had diabetes for greater than one year with an HbA1c of greater than 8.5mmol/L and at least one other chronic condition i.e. hypertension, chronic obstructive pulmonary disease, coronary heart disease and chronic renal disease (stages 1-3)

·      6 services in the Torres and NPA Hospital and Health Service (HHS) region

        (Badu Island, Bamaga, Injinoo, New Mapoon, Seisia and Umagico),

·      3 services in the Cape York HHS region where services are delivered by Queensland Health, Apunipima Cape York Health Council and RFDS

         (Kowanyama, Mapoon, Napranum)

·      3 communities in the Cairns and Hinterland HHS region where the service providers are all Aboriginal community controlled health services. 

       They are Mareeba (Mulungu Medical Service) Mossman Gorge (Apunipima Cape York Health Council, ACYHC)

       and Yarrabah (Gurriny Yealamucka Health Service)

 

Prevention and Management of Chronic Conditions in Rural and Remote High Risk Populations: 

There are 644 adults diagnosed with Type 2 diabetes who have consented to participate in the study. 

Participants will be a patient of Primary Health Care Service provided by Queensland Health located in remote Far North Queensland, with significant Australian Indigenous population.

Community

Total Participants Recruited

Mer Island

204

Darnley Island

153

Stephen Island

27

Saibai Island

145

Yorke Island

115

TOTAL

644

 Associated Studies:

198/644 patients will participate in "A Sustainable Workflow"  - Diabetes Care and Management in Remote Torres Strait Islands.

Community

Total Participants Recruited

Mer Island

61

Darnley Island

44

Stephen Island

12

Saibai Island

48

Yorke Island

33

TOTAL

198

30 / 198 will participate in "Psychological Insulin Resistance" study.

Community

Total Participants Recruited

Mer Island

9

Darnley Island

8

Stephen Island

3

Saibai Island

5

Yorke Island

5

TOTAL

30

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